Explore , research studies in all 50 states and in countries. Find a study all fields optional Saved Studies. Recruiting and not yet recruiting studies All studies. Condition or disease For example: breast cancer x. Other terms For example: NCT number, drug name, investigator name x. For any questions about participation or any issues that may arise, registries provide a contact, usually the registry coordinator.
Registries focused on specific diseases or conditions collect information voluntarily from people with those conditions. Clinical trials registries collect basic health information from people who agree to be contacted about participating in future clinical trials or studies.
A clinical trial is the study of new ways to prevent, detect or treat diseases or conditions. Volunteering for a registry does not mean a person has signed up for a clinical trial. Participation in a disease registry can sometimes become a first step toward participation in a clinical trial, but registries and specific trials are not directly linked. Disclaimer: The following listing is not intended to be comprehensive, and the inclusion of any particular organization on this list does not imply endorsement by the National Institutes of Health or the Department of Health and Human Services.
Our intent is to provide information about registry efforts at the national level and therefore have not included many local groups that can offer valuable assistance to individuals, their families within a limited geographic area. Site Menu Home. Search Health Topics. Search the NIH Guide. List of Registries. Frequently Asked Questions What is a registry? Autoimmune Registry. Breast Cancer Surveillance Consortium. Cancer Genetics Network. The Cerebral Palsy Research Network.
Search the NIH Guide. Finding a Clinical Trial. NIH Clinical Center. Back to Top. To sign up for updates or to access your subscriber preferences, please enter your contact information below. A-Z Index. Listing of Clinical Trial Registries. May 28, The International Committee of Medical Journal Editors announced a policy in that as a condition of publication, clinical trials would be required to be listed in a public registry [1].
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